Just got a call from @Yale. The total growth is about 19.7% since start of study. 20% is an automatic out. There may have been a way to squeeze another round in, but one of the other issues is that there were many tumors that were not measurable in my lungs which are now measurable.
I may try to go back to FOLFOX, may be able to squeeze a few treatments out before the neuropathy comes back. And it will come back rather quickly. Or I can go on Stivarga, which is a pretty nasty drug.
It seems FOLFOX may be the move. Normally at this point people are not in the shape I am in. It is tougher to handle drug combinations, as compared to one drug, the worse shape you are in. But if it slows things down a bit, it may buy me the time I need.
It is a lot of fun. Cold sensitivity - touch the handles on the fridge and you want to scream, wear a scarf because breathing air can hurt, were the main things I had the first time. The neuropathy also, which remained. But otherwise I did okay. Queasy during the first week of each two week cycle, but usually some crackers did the trick. Plus I didn't eat much the first week of each cycle, so it will help keep my weight down.
Then Stivarga, which my oncologist said, basically, they would rather see me die a few months quicker then deal with what it normally does to people. But I have been good with #chemotherapy overall, so obviously I will give it a go when needed. There may be a time when I stop. But it is not today.
I am going to climb on the bike shortly and watch The Michael Kay Show, get my head back straight a bit and get out of this short pity party.
Like I said, I knew it was coming the last few months, but still not fun.
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