Tuesday, August 24, 2021

Insurance Says No

 


Yup.  You read that right.  My doctor wanted to give me an injection today because of my cancer treatments, and my health insurance company said no.  It will work out okay, but it is an unnecessary delay on something I need.

Let me rewind a bit.  First off, I am lucky to have health insurance even with all of the issues the come up.  Second, I am lucky that I still have options and access to cancer care with all of the issues that come up.  That, however, does not mean I should not point out issues and problems that come up.

Anyway, today was the day to get blood work, a doctor's visit and then the pills to start my next round of cancer treatment.  

It takes awhile to get to Yale.  Today with traffic it was over 2 hours to get there.  Which is a pain. But I can get treatment, so ultimately I deal with it, more so because I like the doctor and the rest of the staff where I go 3 out of every 4 weeks (one week off.)  They make it worthwhile.  Every time I am concerned/bummed/ticked about the travel and other things related to Yale, when I get there and start speaking with everyone, it becomes okay. 

Once there, things started well. On prior visits I told a nurse, who often is the one drawing my bloods, about how my wife gave me Super Hero bandages when I had my chemotherapy pump disconnected on the first two types of chemo - FOLFOX and FOLFORI

Today she had a box of Super Hero band-aids.  She gets 1,000,000 stars on Yelp - not only for this, but she laughs at my jokes.  Regardless of whether they are really funny.  She deserves a raise and hazard pay.  She also mentioned that other patients are having fun with these.  A smile or fun during these things is always great.

Then we waited a bit for results to come in.  I went through the standard questions - did my medications change?  Any recent falls?  How are my bowel movements?  Of course that just causes me to make some joke.  Sorry.  Just can't help it.  One day I will grow up.  I promise.  Maybe.

I kept on checking the patient portal to see if the blood work results were posted.  Finally they were posted and I looked at them as the doctor walked in.  I am guessing he probably saw them moments before.  I looked at him and said "No chemo for me this week."  He replied, "You saw your blood work."  Yes.  I am getting good at some of these things.

My blood counts, including my White Blood Cell count and absolute neutrophil count (ANC), were really low.  Like wear a mask as a precaution low.  He also said I should get an injection of Neupogen today and over the next couple of days to increase my blood counts.   So I went back upstairs to get my injection and my port access removed.  Figured I would rest a bit, not train today, and would be well on my way to getting blood counts up and would resume treatment next week. 

Then someone came out and said there would be no injection.  Insurance said no injection.  Unreal.  They refused to pay for an injection.  Even better, they said they would approve 3 injections.  But not one today at the doctor's office.  They called and said they will try to have the injections to me by tomorrow or maybe the day after.  So in other words, these are drugs I need and they acknowledge it by approving the treatment.  But instead of me being able to get treated today, it will happen sometime in the next couple of days.  My wife will be administering the injections.

Thankfully, I am healthy (other than the cancer thing and some side effects from chemo) and I should be okay by next week even with the delay in starting the injections, whether tomorrow or the next day, but there is absolutely no reason I should not have started treatment today.  At this point it is past infuriating, it is kind of expected.  But what happened today should never be allowed to happen to any patient.  


Monday, August 2, 2021

Water


 For the first time since November, 2020, when I snuck one last tethered swim in, I was in the water. Approximately 1,200 yards.  It is an estimate of distance.  When I was in the pool, I would go between 1.6 to 1.7 yards a stroke, sometimes more.  Since I am tethered, I am using a 1.3 or 1.4 multiple. Last 7 day totals

The key things I can look at currently are my heart rate and interval time.  Did a couple of 6:30 seconds section (6:30 non-stop) and one 10 minute section non-stop.  

I went back to January and February 2020 numbers when I was still going to a fitness club.  I was putting in a lot of yards in the pool and times were strong (for me).  After a less than stellar swim, I was able to concentrate on the things I learned in a coaching session with Total Immersion.  It helped a lot.  I had dropped at least 30 seconds per 100 in late 2019.  And 2020 I was focusing on improving.  Maybe 2022 :)  


Sunday, August 1, 2021

The End Of July - 2112 and Kryptonite



 So yesterday was the last day of July.  And I wanted to make sure I did something, especially since I was waylaid for the first 15 days of July.

Garmin watch said I should rest. I was not listening. I am not sure how much I trust Garmin recommendations anyway :)  

So I started running, and lungs were a bit more congested than they had been.  Legs a bit like rocks.  I still need to figure out what to do for that.  Started becoming a bit more attentive to trying to do some stretching and hydrating.  But not quite working yet. So by 15 minutes in, I was thinking, "it is okay, I did something."  But then the usual kicks in.  

"Well I am almost at mile, so might as well do a mile, especially since the false flat at the start always makes the beginning difficult."  "Made a mile, about 1/2 mile back to home, let me an easier way."  At a mile and a half "Think the coughed out all the garbage in my lungs.  Though legs still stink, maybe a bit better.  Can I hit 2 miles?"  

Around 2 mile mark my legs felt pretty good.  Looser.  Some of the best I felt in awhile. There is a section of running I had not done in quite awhile.  I knew a 5K was happening.  And was pretty sure I was going to go 5 or 6 miles.  Nothing strenuous.  Some of my favorite little sections/loops, which were all a little over a mile a way.  So I happily continued, looking forward to finishing and then going to watch a charity softball game.   The third mile was my best of the first three, was feeling good and made mental notes of how it felt in terms of how my stride distance felt, how fast I was turning over - it all felt good. Then at the 5K mark, it all just ended. 

Legs turned to rock.  Congestion.  Was like someone threw a switch.  I tried a bit more but was not happening.  Felt a bit sick, and thought I was going to be pretty sick, but after about 5 minutes it cleared up. 

Of course I was pretty far from home.  So started walking.  One of the things I have been meaning to work on is getting better at walking, since run/walk is strategy that works for many.  So there were points where I was walking at a faster pace by concentrating a bit.  Helped that AC/DC came on my playlist - Shook Me All Night Light.  The BPM was perfect.  

Then the Overture and Temples of Syrinx from 2112.  That I more listened to as I walked - I would be trying to pace the guitar parts.  Bah bum.  Bah Bah Bum. Bum (with delay).  Dah dun dun dun dun dah dun. Then those drums and everything kicking in.  Would not have been pretty ;) 

Kryptonite came on, and something worked in that.  I felt comfortable during most of the times I picked up the speed occasionally.   Going to make sure to work on this some more.

Finally made it home.  Took me a bit to feel good enough to shower then head out to the game, so I was about 1/2 hour late, though I made it by the top of the third inning.

July was not a great month for training, basically missed the first 15 days.  But still not bad.



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